A boy who has cerebral palsy, but cerebral palsy does not have him.

Sunday, May 6

Soup Labels

Logan has a couple several "labels", sixteen to be exact. If he were a soup, he'd make for one hardily robust dish. Made from the most wicked ingredients, which include: cerebral palsy (gmfcs level 5), autism, cognitive impairment, obstructive sleep apnea, hypoxemia, dysphagia, failure to thrive, gut dysmotility, acid reflux, chronic sinusitis, chronic constipation, chronic cough, asthma, allergies, pectus excavatum, and global developmental delays. Blended with the finest organic, wholesome ingredients: love, determination, strength, courage, and an overabundance of perseverance.

Should the statement "labels belong on soup cans, not on my child" offend me? Not in the least. Hard to take offense when he officially has sixteen labels. He will have the majority of these labels for the rest of his life and will pick up more throughout his journey. It is okay to point one out, discuss it, spread awareness because it is not one single ingredient that defines Logan. He is a perfect blend. When I look at him, I don't see a soup can. I see a magnificent, superb blessing. I see Logan.

Yogi
 

Saturday, March 31

Snaggler

Axel

Love, LOVE, my little snaggle tooth!

 

Wednesday, November 30

His Own Prison

Imagine, if you will, being locked in a cage. A cage where you can not speak one word and you are unable to walk. You will never escape from this dwelling, ever. All while, surviving your days lusting for a life without confinement. How would you feel?

In a nutshell, this is Logan. His body is his cage. He is in a daily battle against cerebral palsy that prevents him from doing what he desires to do. At six and a half years old, he is unable to stand, walk, talk, eat, and drink by mouth. While he perseveres with his magnitude of strength, courage, and determination, I am reminded daily to be thankful for the most miniscule of things. More than that, I am thankful God blessed me with my son, my hero, my Angel.

Blogan

Friday, September 23

Can You Help?

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This fund raiser is like no other. Logan’s school, Holland East, is awarding the Top Seller with a one year long family membership to Holland Community Aquatic Center. This pass is a minimum value of $490.00. Amazing!!!

What is even more amazing? The chance to swim for one year is FREE therapy for Logan!! His cerebral palsy is a daily battle against his own body. He’s not able to do the things he wants to do, because his body won't let me. Swimming is a therapy that can help Yogi in more ways than one. Here are some of the benefits......

The buoyancy of the water relieves stress normally placed on muscles by gravity. The water also gives the child a grander range of motion and coordination, allowing the child a chance to build muscles and improve coordination. Plus, the sensation of water on the body is good for neurological development.

Will you please help Logan be Top Seller so he may reap these awesome benefits? Not only are you helping him, but his school too. Just click the link below to start shopping and items will be shipped directly to you. Your help and support is very much appreciated!!

The due date for all orders is Monday, October 3. That is just one week to make this superb boy Top Seller!

Here’s where to start:

Holland Public - East is having a fundraiser. You can shop online at
http://www.funservicesgr.com/store/brochures.php?sID=eas4231
The group receives profit from the sale and the seller will receive prize credits. Enter the seller ID below to begin.

Seller: Logan Fleury
Seller ID: eas4231

Thank you for your support.
If the link above does not work, please use the following link and enter the seller ID:
http://www.funservicesgr.com/store/index.php

Friday, April 29

The New Kid In Town

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The third and final addition……

Axel Thomas blessed us on March 11, ‘11. Weighed 8 pounds, 4 ounces and measured 19 inches.

His uber cuteness makes me want to squeeze him ‘til he farts!

Wednesday, November 3

Wordful Wednesday

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What makes these few photos so astonishing? First off, these are remarkable simply because those are my boys. I absolutely adore every molecule of their being. I seriously love them so much I could squeeze them until their little heads popped off. Okay, not literally to the point of popping off their heads, but maybe enough to make them fart.

Another reason these pictures give me the warm fuzzies is this….. Approximately, oh, one or two years ago, Logan would start crying at the sight of Leviathan. No joke. Levi would just come into Logan’s sight and that was enough to provoke tears. It was heart breaking. Levi desperately wanting to be with his big brother and Logan desperately not wanting a little brother any where near him. Logan’s sensory issues were that severe.

Now, Logan’s tolerance flabbergasts me. From then to now, it is night and day difference. Logan is all about letting Levi invade his space (as seen above) and allows hugs and kisses. What impresses me even more, is that Logan will even initiate interaction and reach out for Levi. Holy wuh, that is amazing on so many levels. The brotherly love continues to evolve into a beautiful bond they will share for a lifetime. LOVE it!!!

Monday, October 11

Ta-Ta Spasticity!

Do you remember what you were doing one year ago? Any given day, I can’t even remember what I ate for breakfast, but I sure recall a major incident I was facing last year. I remember being overly concerned with Logan’s spasticity, especially in his legs. He was stiffer than a board. When I used to pick him up, his legs were like steel beams, straight in front of him. Since I couldn’t carry him on my hip, I’d use his legs to open doors when transferring him from room to room. He used to have these golf ball sized knots in his calves, constantly. I assumed at that time, that some of his crying spells had to do with his tightness and muscle spasms.

I was witnessing his spasticity getting worse day by day, as it typically does worsen over time. The concern turned to distress. It came to the point, where I had driven him two hours away from home for a consultation for PERC lengthening. I was even tossing around the idea of round two of that poisonous Botox (even though it didn’t do much of anything the first time), because I was desperate to find him relief. Also, the thought of trying a new medication, Diazepam, was clouding my brain. I needed and wanted something, anything, to help ease his pain.

At last, I found something that has worked! Logan’s spasticity has subsided and today is nothing what it used to be a year ago. Granted, spasticity never fully goes away, he will always have it in some shape, way, or form for the rest of his life, but we have found a method that truly works at keeping it at bay. It isn’t surgery, Botox, or a drug, it is the Anat Baniel Method (ABM).

Seriously, teaching his muscles new ways to communicate to his brain has reduced his spasticity. To me, that right there is miraculous. Not having spasticity thunking me in the back of the head on a daily basis is a major bonus. Spasticity now takes rank at the bottom of the list for concerns. The way Logan can move his body is remarkable! Some of the major changes are:

-His legs now dangle at his knee when anyone holds him and they are no longer door openers. That’s where little brother comes in handy.

-I am now able to carry him on my hip, when that was never before possible because he had no range between his thighs. I remember wishing I had a crowbar to get his hamstrings apart.

-He no longer has golf ball sized knots in his legs and I can’t remember the last time I had to massage one out. Even his crying spells are less, let me stress the less, frequent.

-When picking up his legs individually, he doesn’t stiffen like a board and his feet have full range of motion. His poor feet never used to dangle when I picked up his leg. Kind of nice to randomly hold a body part and see it flop, opposed to what it used to be.

-He learned to climb (and scare the life out of me) thanks to the release and range of motion he gained.

-He has mastered the ‘W’ sit, which I know isn’t the greatest, but his right leg was never able to go into ‘W’. The muscle was always too tight to go the other way.

Honestly, I could continue this list with at least another half dozen examples of just how much spasticity has fizzled since starting ABM. I’m just thrilled we were able to achieve and maintain these results without any other means of intervention. Finally, spasticity is no longer kicking his butt, Logan is kicking spasticity’s butt!

 

Friday, September 17

Freaky Friday

After Levi and I finished consuming our dinner, we excused ourselves from the table. As we always do, we headed straight to Logan’s room to check on him. Not quite sure how Levi made it in the bedroom before I did (Oh wait, I’m fat, he’s skinny, I’m big, he’s little. Duh.), but right off the bat, Levi, aka Mr. Investigator, says “Mom, Logan pooped.” Which more times than not, is generally the case. Just not this time.

After retrieving the wipes and tub of Desitin, I made my way over to Logan, thinking I’m getting ready to start poop patrol only to notice it wasn’t poop all over Logan’s legs, arms, hands, and even on his foot. It was blood *PANICK* and too much of it!

I immediately started to clean the blood off his body and searched for the source. As I’m inspecting, I can not find a wound anywhere. That is until Logan gave me a hint. He touched the back of his head and brought back more blood *PANICKIER* on his hand. I HATE head injuries!

I could not believe the amount of blood caked in Logan’s hair. Somewhat relieved it was in fact caked, cause it meant the bleeding had slowed down if not stopped. However, cleaning to get to the injury made me cringe, especially not knowing if I’m making the pain worse by trying to tidy up his hair. UGH!

In the end, he has quite the gouge. I’m making a huge guess here and assuming that he fell backwards into the corner of the armoire, which is now moved into the closet so it will cause no future damage to Logan’s skull. The bleeding, thankfully, had stopped at this point. But the pain….. not so much. He kept touching the back of his head. Hoping the dose of Tylenol helped take the edge off his pain.

What I’m wondering is….. Why the heck didn’t he cry? I know his threshold for pain is ridiculously high, but he didn’t even make ONE peep. Not one lousy peep which scares me near death. I mean, had the injury been more severe, there’s the possibility he could have bled to death. You never know! And here Levi and I are in the kitchen stuffing our faces, oblivious that there is anything wrong with Logan. Judas priest!!!

I despise the feeling of feeling like I can’t do anything without having an incident. Anything as in make or eat dinner, fold clean clothes, empty the dishwasher, check the mail, or even use the bathroom. More times than not, that is always the case, an incident of some nature. Other injuries, other craplosions, other whatever….. It’s always something.

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